Good practice in community-based participatory processes in Aboriginal and Torres Strait Islander research

By Jan Chapman, Alyson Wright, Nadine Hunt and Bobby Maher

authors_jan-chapman_alyson-wright_nadine-hunt_bobby-maher
1. Jan Chapman (biography)
2. Alyson Wright (biography)
3. Nadine Hunt (biography)
4. Bobby Maher (biography)

How can participatory process in Aboriginal and Torres Strait Islander communities be made adaptable and flexible? How can theoretical frameworks take into account the cultural and geographical complexities of communities and their contexts?

Here we provide five key principles that we have found useful in engaging communities in the Mayi Kuwayu Study (https://mkstudy.com.au/). These include: community decision-making; involvement in study governance; community capacity development; effective communications; and, long-term and multi-engagement processes.

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Participatory research and power

By Diana Rose

Diana Rose
Diana Rose (biography)

Can even the most well-designed participatory research really level the power relations between researchers and the relevant community? The key issues are who sets the research agenda, who drives the research process and governs it, and who interprets information. In all these aspects of research, the aim is for the community to no longer be ‘subjects’ but equal partners.

In this blog post, I outline challenges to achieving this mission, so that we can be realistic about what’s involved in trying to achieve equal partnerships. The difficulties identified are not proposed as tensions to be ‘solved’ but as dilemmas that can be articulated so as better to facilitate good practice, not reach an unattainable perfect state.

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Overturning the design of outcome measures

By Diana Rose

rose
Diana Rose (biography)

Outcome measures in research about treatment and service provision may not seem a particularly controversial or even exciting domain for citizen involvement. Although the research landscape is changing – partly as a result of engaging stakeholders in knowledge production and its effects – the design of outcome measures has been largely immune to these developments.

The standard way of constructing such measures – for evaluating treatment outcomes and services – has serious flaws and requires an alternative that grounds them firmly in the experiences and situations of the people whose views are being solicited.

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